Welcome to Augustina`s WebSite!
The idea to develop this page came from Agustina and her mother, Andrea. It is because as time passed, we came to realize that there are many children that suffer from this problem and although it is present in many different intensities and levels, in all cases, it accompanies them for all their lives. Since SPINA BIFIDA (MYELOMENINGOCELE) requires continuous visits to doctors, operations, various treatments, etc. family support is vital. It requires courage, will, hope, affection, and fundamentally, the love of the entire group since all are an important link in the chain of support. In addition, it is important that these children are able to spend time with friends and teachers freely, without feeling over protected because of their status. Because in reality, these individuals wish to participate in activities like everyone else in spite of their limitations.
We know that at first, all those who experience this feel overwhelmed at being confronted with a situation for which they are not prepared and have many questions with so little answers. However, time will show that in spite of the everyday difficulties and obstacles, there are small and large rewards alike to be had. We feel that in our case, it has been and continues to be valuable to share our experiences with others who have or are encountering the same challenges. We feel this collaboration allows us to accomplish more, as well as helps to lessen the hardships of the situation. I would like to reiterate that because this problem affects the entire family, whether directly or indirectly, it requires a positive attitude of all, especially the parents since new obstacles appear constantly. The important thing is to never to give up, because the positive is sure to appear despite the difficulties.
Finally, I must commend our children Delfina, Luciano, and Paulina for understanding the situation and offering continuous acts of tenderness, love, and encouragement to continue moving forward. Ultimately, I must dedicate this paragraph to Agustina, who is a shining example of life. She readily does what is best, despite that it may be painful or require much sacrifice, and does not always end with optimal results. She always looks to move forward, without looking back. For her nothing is impossible, she can do anything.
P.S. A note of gratitude to our friends, teachers, the doctors and their teams, and especially to all of our family (Ofo, Bobe, Chuchi, Osvaldo, aunts, uncles, and cousins).
Walter S. Torchio
Father
